Skip to main content

An Introduction

Being a parent to a very young child with acute asthma is tough. There's no two ways about it. Although the Doctors are reticent to give toddlers the diagnosis of asthma (with good reason; should 'A' wish to do certain jobs in later life then an early label of (potentially) short lived asthma will stay on her medical records for life. 'Post Viral Wheeze' at this age, we're told should not prevent her). But let's be clear, the disease we're fighting against is asthma and the drugs that we're giving our little girl are strong, scary and designed to prevent and (when necessary) improve acute respiratory distress.

With this blog I want to share our experiences with anyone who might find themselves in the same situation, provide an insight to anyone who may be interested and to keep a diary for ourselves of A's attacks, symptoms, medications and anything else likely to help us in our ongoing efforts to prevent or lessen the next potential attack. Between attacks, asthma isn't a part of our lives. Other than the daily preventative medications, we don't limit A's activities and we try to encourage others to do the same as life should continue as normally as possible. The side effect of this however, is that often with the hectic nature of our jobs, two very young children (and the inevitable sleep deprivation) we can't always remember all of the details of the last attack, what each doctor has said or exactly what did and didn't improve the situation last time. For this reason and for our own sanity we will use this blog to log each attack. 


Comments

Popular posts from this blog

Trialling a summer steroid break

So we've taken the plunge, fully supported by A's consultant, to stop the Clenil (brown) inhaler over the summer and just continue with the Montelukast. A is often a lot better during the summer and had a number of colds last year which didn't result in a flare up of her asthma symptoms. The idea is that a break from the steroids can only be a good thing and that the Montelukast with far less side effects and a good track record in treating asthma in children [ Knorr, Barbara, et al. "Montelukast, a leukotriene receptor antagonist, for the treatment of persistent asthma in children aged 2 to 5 years." Pediatrics 108.3 (2001): e48-e48 ] would keep any exacerbations at bay. Feeling a teensy bit concerned today though I must admit, as she has come down with a cold and who knows how effective the Clenil was in preventing any potential attacks during the summer last year. She's sleeping now and we've just been in and given her the blue inhaler as her breathin...

Your child can't breath? Here, have a placebo!

Well, it seems that we were wrong about the Atrovent. The consultant was really quite down on it for use in one so young and seemed to think that the potential short term side effects were not worth it. I think perhaps that the reason that we've been disillusioned with the consultant appointments in the past is that he's extremely blunt about the fact that there really isn't anything they can do for viral induced asthma, and that's really not what worried parents want to hear. We can throw preventative drugs at it, or not, and the likely outcome will be the same. He cited a couple of research papers both of which looked at giving prednisolone to children with acute respiratory distress, one paper focused on parents administering it at home and the other in hospital. Half of the children in each study were given a placebo. Imagine that!? You think that you're pumping evil steroids into your child because it's your last resort, you're worried to death and you ...

Prednisolone we hate you...

...yet we really can't do without you! So for the third time in 4 weeks (we had a whole week off!), A is back on Prednisolone after a very nasty flare up over the past few days. I have to be honest, I'm feeling at my wits end wondering where this is going to end, three attacks in four weeks regardless of being on all of the medication we have to hand and each attack worse than the last. This time she hasn't even responded to the Prednisolone quite so quickly. At the moment I genuinely don't understand the term 'well controlled asthma', we have no family history of asthma, (so we are rookies) but as far as I understand it A is on all the medication that she can have at her age, so what more can we do? We know her triggers, we recognize early when her condition is worsening, and yet nothing we do appears to make a difference. Giving Prednisolone is such a double edged sword. When we see her condition worsening the options are; go in early with it to try to pre...